A honey-ism and a weekend report...
We had a terrific four day weekend with my family is SD. While hectic, she had an absolute blast and loved spending time with everyone. We had some challenges. She was sick a few mornings but it passed quickly and my honey amazed me with her stamina and tenacity once again. Though unable to assist a lot with the plantings and yard work going on, she spent most of the weekend outdoors and walked more than I thought possible! While I was gone visiting my father, she tripped getting out of a chair on her flip flops and suffered a fall, (her feet and ankles are to swollen for any regular shoes) scrapping her head and much to her dismay, she needed help getting back up. Luckily, it was in the grass and she was quickly surrounded by family members that lovingly helped her and not only tended to her scrap but quickly figured out that oversized water shoes would be a better solution for her feet.
Within a few hours they had her new foot gear and met us at a local landmark. A beautiful water falls park that we so enjoyed. When I noticed the grass stain on her hat and asked if she'd fallen, I got the eye roll and the "I'm fine." standard answer...she'd added that her family had taken care of it, so I should quite 'mothering' her. :o) For my girl...this is HUGE. Here's a link to the park we visited.
If I could change just one aspect of my life, (aside from my honey's cancer) it would be to have gotten closer and more involved with my family sooner. We all have reason's...job's, geography or distance....but in hindsight, (which of course is EASY!) if you have a loving and supportive network of people in your life, whether by blood or not, MAKE THE EFFORT to be a part of it!
Yes, it's messy at times and can most certainly be maddening with scheduling and your own commitments but I believe and KNOW that in good times and bad, those memories are precious...and truly in the end; are all we and our loved ones have that cannot be taken away. It saddens me greatly that I deprived my own children of this...yes it would have meant leaving their friends behind BUT if I'd done it early....could'a, should'a, would'a!
Even though she hates it, we're getting a wheeled walker for my sweet girl this week...today in fact. The risk of falling is simply to great. We are going to the local waterpark this Thursday and plan to spend the afternoon floating on inner tubes and soaking in the wave pool. She worries about how much effort this involves...for me! Silly ol girl!! I'm just thrilled that we're GOING!! I told her that if she can stand to be with ME in a swimsuit publicly, everything else is easy! LOL!
Thanks to the efforts of my sister in law (We LOVE you Lisa!) and the kindness and generosity of so many people on the gofundme page she started, I'm able to take some extra time off from work and make more of these memories with and for my girl and our family. Thank you doesn't begin to express our sincere gratitude and appreciation to all of you.
We are back to draining her lungs daily and she does need her oxygen now more often than not. Today, she's been resting more but is still eating very well and other than some anxiety and fatigue is doing well. Her hair is slowly coming back...think G.I. Jane buzz cut! :o) Her smile and laugh are just as infectious as always...she has begun to pray aloud again...something she had stopping doing for some time. She gives thanks for her family...her friends and for all of the wonderful people who have shown her such great love and support. She gives thanks for what she is able to do...and simply ask for the best days she can have for as long as she can have them. She continues to amaze and inspire me...as do you all.
I'll get some pics of the water park adventure up ASAP. Honey sends her love as always...